#护理SCI文献解读# 青少年Tourette综合症患者社会适应量表的编制及信效度检验

青少年Tourette综合症患者社会适应量表的编制及信效度检验

研究背景

Tourette综合症是发生于青少年期的一组以头部、肢体和躯干等多部位肌肉的突发性不自主多发抽动,同时伴有爆发性喉音、或骂人词句为特征的锥体外系疾病。典型表现为多发性抽动、不自主发声、言语及行为障碍;可伴有强迫观念、人格障碍,也可伴有注意力缺陷多动症。这些症状的存在可以导致患者自尊下降、心理压力增加和心理功能低下等身心的不适,尤其是在注意力集中和学习方面表现突出。

Tourette综合症目前很难治愈,严重的影响了患者的生活质量和社会适应。比如,有研究指出,Tourette综合症患者经常会遇到被戏谑、模仿、被(同龄人)拒绝以社交互动等问题。

社会适应是指个体与其社会环境之间的相互作用。评估Tourette综合症患者的社会适应可以了解他们的心里社会功能和需求等,进而帮助其在社会、情感和家庭关系等方面提供有效策略。<研究意义>

目前还未有针对Tourette综合症患者社会适应水平评估的工具,因此,本研究旨在编制这样一份工具。

<除了这个疾病,是不是还有一些其他的慢性患者会存在社会适应的问题?大家可以去看一下是不是有相应的量表,至少“社会适应”主题可以给我们很多提示~>

以下是本量表编制的流程:

ABSTRACT摘要

Purpose The aim of this study developed the psychometric properties of the social adjustment scale for adolescents with Tourette syndrome (SASATS).

研究目的:本研究旨在编制青少年Tourette综合症患者社会适应量表

Design and methods A cross-sectional study design was conducted. 346 adolescents with Tourette syndrome (TS) were purposively sampled from pediatric outpatient departments at two hospitals in Taiwan. The scale was developed through a phenomenological study of adolescents with TS and by reviewing the literature. The reliability analysis of the SASATS was performed using the corrected item-total correlations coeffificients, Cronbach alpha coeffificients, and test-retest correlations. An exploratory factor analysis and confifirmatory factor analysis were used to examine the construct validity.

研究方法:采用横断面研究设计。本研究以台湾两所医院的儿科门诊为对象,以346名患有Tourette综合症的青少年为样本。通过对青少年Tourette综合症患者的质性研究和文献回顾而编制的。采用校正后的项目总相关系数、Cronbach alpha系数和重测相关系数对SASATS进行信度分析。本研究采用探索性因子分析和验证性因子分析来检验建构效度。

Results The content validity index of 0.89 was obtained, and acceptable model fifit was achieved according to the explanatory factor analysis and confifirmatory factor analysis. The fifinal scale had 17- items and four factors: relationship between self and TS, academic performance, family relationship, and peer interaction. Acceptable values of 0.81 and 0.87 were obtained for the test-retest and internal consistency reliabilities, respectively.

研究结果: 内容效度指数为0.89。量表包括4个维度和17个条目,其中维度分为:自我与Tourette综合症的关系、学业成绩、家庭关系和同伴互动。重测信度和内部一致性信度分别得到0.81和0.87。

Conclusions  The SASATS is a reliable and valid instrument for evaluating social adjustment status in TS adolescents.

研究结论: SASATS是一种可靠有效的评估青少年社会适应状况的工具。

Practice implications The SASATS is easy to use and offers an effective scale for nurses and healthcare providers in clinical and academic settings. It can quickly measure and detect the psychological functioning of the social adjustment of adolescents with TS during interpersonal interactions. Moreover, interventions can be provided to improve adolescents' social adjustment and promote their mental health.

实践意义:SASATS可以有效评估青少年Tourette综合症患者在人际交往中的社会适应心理功能。此外,这也为后续提供干预措施,改善青少年的社会适应,促进他们的心理健康提供了一份有效测评工具。

希望能给老师们一点提示!

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